I have written in previous posts a little bit about the history of my Aspergers and what it was like for me growing up, but I haven’t really gotten into it in great detail yet. Every aspie is different, comes from a different background, and has a different story to tell.
This is my Aspergers. There are many like it, but this one is mine.
I only became aware of my Asperger-ish tendencies a few years ago when my daughter was diagnosed, but the roots go back to when I was very young. When I was in preschool, I remember bouncing back and forth between friends, trying my best to connect with whoever was within proximity of me at the moment. I tried my best to mimic in order to be accepted; this works pretty well as a child, however I can remember not really having a sense of who I was. I would absorb the traits of those around me in order to blend in.
The defining moment in my young childhood came at age 6 when I was hospitalized for a severe kidney condition. I got sick on the first day of school, was rushed to the hospital, and nearly died. I was in the hospital for 6 weeks, subjected to blood draws and regular dialysis treatments. My family was devastated that I was so sick and scared of losing me.
The thing I remember most vividly is all the cool toys I had in my hospital room.
Coming up next on Pimp My Pediatric ICU…
Granted, I was only six, so my memory of the experience shouldn’t really be picture perfect. But don’t you think it’s a little strange that I have absolutely NO memory of the horrible medical procedures that my mother tells me I had to endure, yet I can remember with great clarity the Lego kits my dad and I worked on and the inflatable Superman doll that hung in the corner during my entire stay? I think my brain decided that it wasn’t going to connect itself to what was going on, and I must have checked out and gone somewhere else mentally during the rough parts. I still use this skill to my advantage from time to time. I don’t know if the stress caused my brain to adopt an overall emotional disconnectedness – virtually “causing” my Aspergers – or if it was my aspie brain that allowed me to get through it. All I know is that the experience had a profound effect on me and my mental processes. It’s like my super hero origin story.
Able to create soul-crushing social awkwardness in a single sentence!
As I got older, I began to show more of what I realize now were classic autism/Aspergers traits. I memorized the bus route home from school, including street names; I even helped a substitute bus driver find the correct route on one occasion. I had a very rigid tv routine, watching my favorite cartoons every single day; I knew by heart when each was on and in which order. I would spend hours “racing” my Hotwheels cars, which actually meant lining up 30-40 of them one behind the other and moving them one at a time for a few seconds each. I would throw tantrums if I didn’t win while playing board games with my sisters. I would play ball in the living room by using a mini-bat to hit a foam ball aroud the house, completely oblvious to the risk of breaking things. I often played 2-player sports games by myself, switching between controllers to play both teams; I even kept stats and charted out seasons that I scheduled myself, long before games like Madden featured their own season modes.
The list goes on…
I actually hid the social aspects of my Aspergers pretty well during school. With the benefit of hindsight, however, the cracks begin to show. Bullies were constantly trying to get to me, only I was so socially clueless that I didn’t even notice. Eventually, thye pretty much gave up and moved on. One of my best friends (even to this day) was with a group of kids who would brutally make fun of me on the bus. One day the other kids weren’t there, so he invited me to his house to hang out. Oblivious Aspie Me said, “Sure!” I continued with my “blending in” strategy, getting along with many types of people but never really connecting to any of them. I had a small group of close friends, but even they were distanced from me; I very rarely hung out with any of them one-on-one.
“Thank God you guys are all here! I’m terrified of each of you individually!”
When I went to college, my isolation became official – I’m not exaggerating when I say I did not make one new friend during my four years in college. I tried a few times early on, but I just couldn’t make it work. In my mind, I had nothing in common with anybody at all. I had already figured myself as an outcast. Most of my social interaction came via the internet – where I could be whatever I wanted to be, take my time to measure my responses, and avoid the intensity of face-to-face contact. I actually met my wife over the internet during this time, and somehow she wasn’t completely turned off by my behavior when we met for the first time.
It was slightly less awkward than this was.
At the time, it wasn’t so obvious to my parents that something was up with their son. Autism spectrum disorders weren’t featured as prominently in the news as they are nowadays. But looking back now, and with the benefit of the knowledge I gained while working to get my daughter diagnosed… it’s pretty clear. My childhood is no doubt different from the stories of other spectrum children, but I’m sure it also runs parallel to them in many ways. I worry about my daughter a lot – will she have friends? Will she be happ? Will she be successful? Looking back on my story gives me a sense of peace. If I made it this far in the face of this challenge, then the potential of my daughter is limitless.
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Tags: alone, antisocial, anxiety, Aspergers, Aspie, Autism, awareness, bullies, bully, children, daughter, diagnosis, family, fear, friends, happiness, history, internet, isolation, parenting, self awareness, Social Anxiety, son, stress, tantrum, uncomfortable, video games, wife
It really is a no-win situation.
There were some issues with the bank that needed to get taken care of this morning… ok, fine, I’ll admit it. I forgot my PIN number for my bank card. As if I wasn’t already feeling stupid for the other stuff that I’m about to talk about. Thanks a lot, dickwad.
Yes. Yes it did.
But I digress.
In order to get my PIN number reset, I had to call the bank and deal with (errrrg) customer service. This is not one of my many talents. In fact, I usually come off sounding more awkward than that friend of yours who asks you to be the best man at his wedding after his fiancee has already cheated on him with you. We’ve all been there, right?
“So how are things going with the florist?”
So, this situation leaves me with only the following options:
A) Call the bank myself, and make a complete and utter ass of myself in the process
B) Ask my wife to do it.
Now many of you are saying, “Well, duh. If you can’t do it yourself, let you wife do it.” However, option B comes with a whole new set of problems. See, the customer service guy ALWAYS needs to confirm my identity before anything can be done. In order to do that, he needs to ask me to verify personal information. So my wife has to hand me the phone so I can talk to the customer service guy. There’s no escape for me, and now even the guy on the phone knows how big a douche I am.
“Hey Bill! Check it out, it’s another lame ass guy who needs his wife to use the phone for him!”
Now, bless my wife, she tries to make things better by softening the blow and telling the customer service rep flat out that I “don’t like to use the phone.” It means a lot to me that she tries, but I don’t think for one second that it makes me look any more normal in the eyes of the person on the other end of the phone. They know the deal, they know what’s up.
So, inevitably, I threw a tantrum later, because I HATE feeling stupid. I only felt better after playing a car racing game with my kids and showcasing my mad skills.
Because video games.
It is still nice to know that I have a family who cares for me – a wife who loves me enough to do the things for me that I can’t do myself, and children who will gladly have their asses handed to them on a platter so I can feel better about myself.
I’m very much Aspie. I’m interested in Aspergers and Autism awareness. I’m up for the cause. That’s what this blog is all about. But that’s not what I’m all about.
I have many other interests. I love sports, football and baseball especially. I follow politics – just not so much, in order to avoid getting angry. And I love to play video games.
(And no, this is not just a shameless segue to promote my other blog… ok, maybe a little bit.)
But seriously, though… I think it’s important to not let Aspergers define me. I may be an Aspie, but I am also a host of other things that have nothing to do with my Spectrum status.
We can only fight the prejudices of others when we decide to stop living up to them.
(Ok, now go check out my other blog)